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New Data Registry Seeks to Prevent Breast Cancer
Published November 2004
A major survey has begun in the Greater Cincinnati area that may help prevent breast cancer by closing an information gap.
Data obtained from women and men diagnosed with breast cancer will be
included in the Breast Cancer Registry of Greater Cincinnati, recently
established by the Department of Environmental Health.
The significance of the project is that while other initiatives have
focused on treatment, the registry will assemble much-needed
information on causes, a crucial first step in prevention.
The UC researchers who maintain the registry and analyze the data work
closely with the Breast Cancer Alliance, the Pink Ribbon Girls,
Patterns, Sisters Network Cincinnati, and other advocacy and service
Ultimately, it is hoped, the registry will include the names of all
people in the area who have ever had breast cancer and provide
information on their medical histories.
It will also gather more comprehensive data on minorities, especially
African-Americans, who are traditionally underrepresented in registries
and health studies. Although the incidence of breast cancer among
African-Americans is lower than for Caucasians, mortality rates are
The Breast Cancer Registry, however, is not a clinical trial. It will
not identify patients for treatment or for new drug testing.
"All we want is words," emphasizes the registry's director, Susan
Pinney, PhD. "This is the first time information like this has been
gathered in our community, and it's absolutely crucial to the ultimate
prevention of breast cancer."
Dr. Pinney, associate professor of environmental health at UC,
emphasizes that all information provided to the registry will be kept
confidential in a secure computer.
The data will help identify environmental toxins, diet and other
lifestyle factors involved in breast cancer, information that will be
used in planning health education, public policy and research programs.
Breast cancer is the second leading cause of cancer deaths among women
in the U.S., and the incidence has steadily increased over the last 25
years. It's estimated that 215,990 women will be diagnosed with the
disease in 2004.
For more information on the Breast Cancer Registry and how to
participate, call 558-0854 or e-mail firstname.lastname@example.org.
Information packets are also available from selected physicians'
offices, mammography sites, breast cancer support groups and community